Repository logo
 

Improving Aboriginal health data capture: evidence from a health registry evaluation

Date

2010-12-07

Authors

Harper, Sherilee
Edge, Victoria L.
Schuster-Wallace, Corinne
AR-RUSHDI, M.
McEwen, Scott A.

Journal Title

Journal ISSN

Volume Title

Publisher

Cambridge University Press

ORCID

Type

Article

Degree Level

Abstract

The lack of high-quality health information for accurately estimating burdens of disease in some Aboriginal populations is a challenge for developing effective and relevant public health programmes and for health research. We evaluated data from a health registry system that captured patient consultations, provided by Labrador Grenfell Health (Labrador, Canada). The goal was to evaluate the registry's utility and attributes using modified CDC guidelines for evaluating surveillance systems. Infectious gastrointestinal illness data were used as a reference syndrome to determine various aspects of data collection and quality. Key-informant interviews were conducted to provide information about system utility. The study uncovered limitations in data quality and accessibility, resulting in region-specific recommendations including conversion to an electronic system. More generally, this study emphasized how a systematic and standardized evaluation of health registry systems can help address challenges to obtaining quality health data in often remote areas where many Aboriginal communities are found.

Description

CC BY-ND

Keywords

Aboriginal health, gastrointestinal infections, registry evaluation, surveillance system

Citation

HARPER SL, EDGE VL, SCHUSTER-WALLACE CJ, AR-RUSHDI M, McEWEN SA. Improving Aboriginal health data capture: evidence from a health registry evaluation. Epidemiology and Infection. 2011;139(11):1774-1783. doi:10.1017/S095026881000275X

Degree

Department

Program

Advisor

Committee

Part Of

item.page.relation.ispartofseries

DOI

10.1017/S095026881000275X

item.page.identifier.pmid

item.page.identifier.pmcid