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Browsing Nursing by Subject "Caregivers"
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Item Assessing the need for caregiver support in Saskatchewan: Gathering perspectives and setting priorities(Oxford Abstracts, 2021-10-21) Hall, Steven; Holtslander, LorraineAbstract / Résumé Background: An ageing population corresponds with a need for informal caregivers. Caregiving burden is the most compelling problem affecting caregivers of older adults. Previous research efforts have explored predictors of caregiving satisfaction and interventions for caregiving support. Our study aimed to set priorities for the future development of interventions for caregivers in Saskatchewan. Objective: Our objective was to engage caregivers in setting priorities for accessible interventions and support. The specific research question we sought to answer was “What do the experiences of caregivers have to offer in setting priorities for caregiver support?" Methods: We conducted an environmental scan of caregiver intervention programming in Canada. We then held two focus groups with caregivers to older adults, defined as 55 years or older for this study. Twenty-three caregivers attended the first focus group, and ten caregivers participated in the second. We used a qualitative descriptive approach and data were analyzed using thematic analysis. Findings: Caregivers of older adults were eager to share barriers and facilitators to their role. Themes derived from data include (1) lack of access; (2) conflict with self and others; (3) the burden of caregiving; and (4) declining health and wellness. Conclusion: Caregivers may struggle to find resources to support them in their caregiving role. Findings from this study indicate that there is a need for more interventions to support caregivers. Furthermore, our data highlights what outcomes caregivers in Saskatchewan want from those interventions.Item Caregivers to older adults require support: A scoping review of their priorities(Oxford Abstracts, 2021-10-23) Hall, Steven; Rohatinsky, NoelleObjectives: Canada’s population of older adults is growing, and the vast majority of older adults who are chronically ill rely on informal caregivers. This scoping review provides a collation of what caregivers have identified as priorities for support through previous research efforts. Methods: Arksey and O’Malley’s scoping review framework guides this review. We searched MEDLINE, CINAHL and PsycINFO databases on July 2, 2021. We selected databases based on their relevance to nursing, health and social science. Inclusion criteria were peer-reviewed research of any design, a sample population of caregivers to older adults (>55 years), manuscripts published in English, and the priorities for caregiver support were identified by caregivers themselves. Results: 34 articles met the inclusion criteria. These studies used various quantitative, qualitative, and mixed-method study designs. We coded caregiver-identified priorities using thematic analysis and quantified the priorities based on their frequency in the literature. We present the following list of caregiver-identified priorities: (1) orientation to the caregiving role; (2) self-care and respite; (3) adapting healthcare; (4) improved supports; (5) information needs; (6) access to resources; and (7) financial assistance. Conclusion: Researchers have previously engaged caregivers in setting priorities for support. This scoping review presents a synthesized and ordered list of caregiver-identified priorities for support. Policymakers, healthcare professionals, and non-profit organizations can use evidence from this study to guide decisions when developing support interventions for caregivers to older adults.Item Queer Caregiving: A Scoping Review of the Lived Experiences of LGBTQ+ Caregivers of Older Adults(Oxford Abstracts, 2023-10-27) Dyck, Darien; Hall, Steven; Hubbard Murdoch, Natasha; Stacey, AdamThe aging population coincides with a higher demand for informal caregivers. An expanding LGBTQ+ community worldwide is accompanied by an increasing number of LGBTQ+ caregivers of older adults. However, the experiences and perspectives of LGBTQ+ caregivers remain poorly understood within the healthcare system. This scoping review compiles literature that highlights the unique challenges, needs, and support systems required by LGBTQ+ caregivers. We used Arksey & O’Malley’s five-step iterative scoping review methodology and identified relevant studies through a search of three electronic databases conducted on May 11, 2023. A total of 57 items were included in this review: 13 quantitative studies, 22 qualitative studies, 6 mixed methods studies, 2 scoping reviews, 1 literature review, and 13 grey literature records. Researcher interactions with participants included surveys and questionnaires, interviews, focus groups, and a support group intervention. Using thematic analysis, we identified five major themes: LGBTQ+ caregivers are highly active in providing informal care; queer caregiving has unique complexities; LGBTQ+ caregivers want to feel recognized and understood; caregiving can be overwhelming; and challenges navigating heteronormative health systems. This scoping review highlighted the distinct experiences of LGBTQ+ caregivers and their specific support needs as individuals and as a caregiver of older adults. Findings from this review emphasize the importance of healthcare professionals receiving comprehensive LGBTQ+ focused education to better understand and support LGBTQ+ caregivers. Further research is needed to address the gaps in knowledge, provide effective interventions, and draft policies to support LGBTQ+ caregivers.Item A scoping review of caregiver-identified priorities for support: Focus on cancer caregiving(Multinational Association of Supportive Care in Cancer, 2022) Hall, Steven; Rohatinsky, NoelleIntroduction The vast majority of older adults living with cancer rely on informal caregivers. Caregivers often require additional support to facilitate their role. This subanalysis of scoping review results collates priorities for support identified by caregivers to older adults living with cancer. Methods Arksey and O’Malley’s scoping review framework guides this review. We searched MEDLINE, CINAHL and PsycINFO databases on July 2, 2021. We selected databases based on their relevance to health and social science. Inclusion criteria were peer-reviewed research of any design, a sample population of caregivers to older adults (>60 years), manuscripts published in English, and the priorities for caregiver support were iden- tified by caregivers themselves. Results We screened a total of 3591 records, and 34 articles met the inclusion criteria. Six focused explicitly on cancer caregiving. In our synthesis, we quantified the identified priorities within the studies using coding and content analysis. Articles related to cancer caregiving were isolated and sub-analyzed. We identify and order five priority themes, as follows: (1) orientation to role; (2) engagement in cancer care; (3) learning about self- care; (4) access to respite; (5) finances and policy. Conclusions Researchers have previously engaged caregivers in setting priorities for support interventions. This subanalysis of scoping review results presents a synthesized list of cancer caregivers’ priorities for support. Policymakers, healthcare professionals, and non-profit organizations can use this synthesis to guide decisions when developing support inter- ventions for caregivers to older adults living with cancer.Item The Saskatchewan Caregiver Experience Study: Implications for Research, Practice, and Policy(2023-04-25) Hall, Steven; Rohatinsky, Noelle; Holtslander, Lorraine; Peacock, ShelleyBackground: A total of 70-80% of community care for older adults is provided by informal or family caregivers. With Canada’s aging population, the number of caregivers to older adults is growing. The Saskatchewan Caregiver Experience Study gathered perspectives and mapped the experiences of caregivers in Saskatchewan and identified their priority support needs. Method: In this qualitative descriptive study, an online qualitative survey asked three open-ended questions regarding: (1) the challenges that caregivers experience; (2) the positive aspects of caregiving; (3) the support needs and priorities of Saskatchewan caregivers. Content analysis was the method used for data analysis. Results: 355 caregivers responded to the survey. The challenges Saskatchewan caregivers reported experiencing are exhaustion, living their own lives, navigating complex systems, self-doubt, and caregiving at a distance. Positive aspects were related to the rewards of caregiving, having the ability and opportunity to care, ensuring quality care for the care recipient, and the experience of personal growth through being a caregiver. Support priorities were help when they need it, an ear to listen and a shoulder to lean on, assistance in optimizing the care recipient’s health, having healthcare professionals that care, and improved policies, legislations, and regulations. Discussion: The Saskatchewan Caregiver Experience Study has implications for research, practice, and policy. Caregivers to older adults have previously shared an interest in research engagement. Researchers should capitalize on this interest by co-creating solutions to improve the caregiver experience. In practice, recognition of the caregiver experience by healthcare professionals is essential in planning services to support care recipients and caregivers in ways that are meaningful and effective. In policy, leveraging informal care in place of institutional long-term care has become a key strategy in maintaining healthcare system sustainability. Findings from this study can be used to adapt policies to improve the support that caregivers to older adults receive and facilitate positive aging in the community. Conclusion: By mapping the Saskatchewan caregiver experience, this study can help to inform how communities, governments, and our healthcare system can best support caregivers in their role.