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Education Before Kidney Transplantation: What Do Patients Need to Know?

Date

2017-01-11

Authors

Rosaasen, Nicola
Mainra, Rahul
Shoker, Ahmed
Wilson, Jay
Blackburn, David
Mansell, Holly

Journal Title

Journal ISSN

Volume Title

Publisher

Sage

ORCID

Type

Postprint

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Abstract

CONTEXT: Poor knowledge about immunosuppressive (IS) medications remains a major problem for patients in the posttransplant setting. Therefore, more effective educational strategies in the pretransplant setting are being considered as a possible method to improve knowledge and readiness for the challenges of posttransplant care. However, the most effective/relevant content of a pretransplant educational program is yet to be determined. OBJECTIVE: To identify pretransplant education topics from the posttransplant patient perspective. DESIGN: A focus group meeting was conducted among 7 high-functioning, stable adult kidney transplant recipients recruited from the Saskatchewan Transplant Program. Demographic information including age, gender, occupation, background/ethnicity, and time since transplant were recorded. A moderator, assistant moderator, and research assistant facilitated the 90-minute focus group meeting using a predetermined semistructured interview guide. The session was audio recorded and transcribed verbatim. Nvivo software was used to code the data and identify emerging themes exploring views of participants relating to the educational information required for pretransplant patients. RESULTS: Patients were satisfied with the education they had received. Ideas were classified into the following major themes-patient satisfaction, transplant waitlist, surgery, medications, posttransplant complications, lifestyle and monitoring, knowledge acquisition, illusion of control, and life changes posttransplant. Knowledge gaps were identified in all areas of the transplantation process and were not exclusive to IS medications. CONCLUSION: Misconceptions regarding transplantation were identified by a group of high-functioning, stable adult recipients who were satisfied with their clinical care. Future educational strategies should aim to address the entire transplantation process and not be limited to medications.

Description

Keywords

education, focus group, kidney transplant, pretransplant, qualitative research, waitlist

Citation

Nicola Rosaasen, Rahul Mainra, Ahmed Shoker, Jay Wilson, David Blackburn, Holly Mansell (2017). Education Before Kidney Transplantation: What Do Patients Need to Know? Progress in Transplation 27(1):58-64. https://doi.org/10.1177/1526924816685862

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Department

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Advisor

Committee

Citation

Nicola Rosaasen, Rahul Mainra, Ahmed Shoker, Jay Wilson, David Blackburn, Holly Mansell (2017). Education Before Kidney Transplantation: What Do Patients Need to Know? Progress in Transplation 27(1):58-64. https://doi.org/10.1177/1526924816685862

Part Of

item.page.relation.ispartofseries

DOI

10.1177/1526924816685862

item.page.identifier.pmid

28555528

item.page.identifier.pmcid

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